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During my own research on Plagiocephaly, I became familiar
with many excellent resources on the internet. If you, the parent of a child
with Plagiocephaly, know of any additional web resources you think should be
added to this list, please email me
with the web address and a short explanation of why you found that web
site to be of value.
Cranial Orthosis
Manufacturers
Cranial Technologies
(DOC™ Band)
1395 W. Auto
Drive
Tempe, AZ 85284
Toll free 1-866-362-2263
Phone (480)
505-1840
Fax (480) 505-1844
www.cranialtech.com
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Orthomerica
(STARband™)
6333 N Orange Blossom
Trail
Orlando, FL 32810
Phone 1-800-446-6770
Fax 1-800-638-9259
www.orthomerica.com
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Hanger Orthopedic Group, Inc.
2 Bethesda Metro
Center
Suite 1200
Bethesda, MD 20814
Phone (301) 986-0701
Fax (301)
968-0702
Toll free 1-877-442-6437
www.hanger.com
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Gillette Children's Specialty Healthcare
(Gillette
Craniocap™)
Main campus: 200 East University Ave.
St. Paul, MN
55101
Technology Center: 550 County Road D
New Brighton, MN 55112
Toll
free 1-800-769-6907
Craniofacial program (651) 229-3905
Technology Center
1-800-578-426
www.gillettechildrens.org |
FDA
Information
U.S.
Food and Drug Administration
5600 Fishers Lane
Rockville, MD
20857-0001
Phone 1-888-463-6332
www.fda.gov |
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Parent
Information
The following is a list of resources for medical
information or parent support. These are the best sites with the most resources
to help you understand more about plagiocephaly, craniosynostosis, and
treatment for all these medical conditions. There are also parent boards
allowing you to communicate with other parents sharing your experience,
suggestions, comments and questions.
www.CranialTech.com
This is the DOC band
manufacturer's site, but it is so much more. There are great resources,
information and links to other helpful websites. There is also a parent
discussion board for parents toa sk questions and share experiences, and the
people who participate are wonderfully helpful. The topics are not just limited
to the DOC Band™.
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www.Plagiocephaly.org
This is a wonderfully
comprehensive site with a lot of information on the assessment and correction
of abnormal head shapes, including plagiocephaly, scaphocephaly, and
brachycephaly. There are great resources here, including parent support,
insurance information, and links to many of the articles cited in
my book.
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www.cappskids.org
This site is sponsored by a
non-profit group and specializes in information, resources, and parent support
for the treatment of craniosynostosis and plagiocephaly. The parent support
boards are separated into sections for craiosynostosis and plagiocephaly,
making them very easy to navigate and keep track of responses to your questions
or requests. There is plenty of information shared by parents on topics such as
band/helmet information, insurance help, and repositioning assistance.
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www.torticolliskids.org
This is a parent-based
website specializing in information about torticollis, including definitions,
tips for treating the condition, and resources and links to other sites.
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groups.yahoo.com/group/plagiocephaly
This is a
parent support board with a lot of information being exchanged on plagiocephaly
treatment. The benefit is that it has a wide audience, but, typical of many
group boards, it is somewhat difficult to follow the messages and your
responses.
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www.ama-assn.org
This is the American Medical
Association's website, with informaiton on medical topics and a "doctor finder"
providing information on licensed physicians in the U.S. |
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